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Cancer Treatment Info Needed(6 posts)

Cancer Treatment Info Neededsnapdragen
Nov 18, 2002 9:11 AM
I know there are some doctor's out there, could someone be so kind as to point me in the right direction to learn about stem cell transplant/reconstitution.

I have a dear friend who will be going through this very soon, and I want to learn as much as I can about it.

Thank you in advance,

Janet
snapdragen@yahoo.com
I'm not a doc, but here's a link to the Mayo ClinicPdxMark
Nov 18, 2002 12:35 PM
http://www.mayo.edu/mcj/bmt/bloodstemcell.html
What type of stem cell transplant?Matno
Nov 18, 2002 7:11 PM
There are a few "established" forms of stem cell transplant (indirectly) such as bone marrow transplants. On the other hand, there are people who claim to have had "successful" stem cell transplants for specific diseases in spite of the fact that leading researchers on those diseases have never seen it happen. (For example, a very bright neurologist that I know recently received an email from a family who claimed their son had been cured of a potentially fatal congenital disease by a stem cell transplant several years ago. They were actually asking for further help since apparently his levels of a certain required peptide were only at 25% of normal - a level which occurs naturally in a certain number of those patients). Bottom line, it's a very broad category of medicine, and each area is more or less completely unique. There is actually very little in the field that has proven effective consistently. More info is necessary for a more thorough answer.
What type of stem cell transplant?snapdragen
Nov 19, 2002 8:53 AM
Bob has a form of lymphoma that is evidently pretty rare, something like 2-4% of people who get lymphoma get this kind. I'm still reeling from the news, but tell me what other information you might need from me. I appreciate the help.

Janet
re: Cancer Treatment Info Neededgregario
Nov 19, 2002 7:13 AM
I was a bone marrow donor so that's my perspective, but you can probably get more info from the National Marrow Donor Program. Go to: www.marrow.org or www.nmdp.org
Go to ACOR.Org and find a mailing list for that specific diseasejs5280
Nov 19, 2002 10:08 AM
ACOR is the Assoc. of Cancer Online Resources. Here's the link: http://www.acor.org/mailing.html

This will give you access to people worldwide who are actually fighting the disease or supporting those who are. I am an active memeber on the Testicular Cancer list and it has been invaluable to me these almost 6 years as a TC survivor. People there should be able to answer specific questions you or your friend might have. The internet, particularly ACOR is an incredible resource, especially in the cases of rare diseases and their treatment. If your friend wants to take an active part of his treatment and benefit from other's first-hand experience, I highly recommend checking it out. Best of luck to your friend in his fight. If I can be of any more assistance, don't hesitant to contact me.