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Riding With An Ileostomy(4 posts)

Riding With An Ileostomyosc
Sep 15, 2002 4:42 PM
I have to get my large intestine removed because of dysplastic lesions, which are precursors to cancer. Consequently, I will need an ileostomy. Does anyone ride with an ileostomy or know anyone that does? I am wondering what the limitations are if any. The only thing that I can see is that I will probably have to ride with mt biking shorts to conceal the bag.
re: Riding With An Ileostomyaliensporebomb
Sep 15, 2002 7:20 PM
OSC: I have a fried who has this. I've forwarded the link to your message to her.
She rides a BikeE recumbent BTW.
re: Riding With An Ileostomyhrv
Sep 15, 2002 8:53 PM
Had one on in 1977 to 'rest' my large int. (chron's). Had it reconnected several months later.

Didn't do very much biking then, but did do about a 60 mile ride once with it. No problem, once you get comfortable with it. I ran, lifted weights, sailed, biked, all without a second thought. Just make sure you see an osteomy specialist to get properly fitted, and get dialed in with it before any long rides.

Aren't there options these days to do some sort of internal pouch or something?

Best of luck to you,
marty
re: Riding With An Ileostomyaliensporebomb
Oct 1, 2002 2:44 AM
A response from my friend finally:

To answer the question posed:

There's no reason a person with an ileostomy can't do damn near anything a person without an ileostomy can do. Most of the reasons not to wear bike shorts are cosmetic. I'm vain. I don't like the outline of the pouch to show, so I favor more of the cotton lycra ensembles than the sheer lycra.
Also a good idea for comfort and sweat absorption.

Drink water. Preferably with electrolytes. I favor FruitWater, myself. It's a little spendy ($1.39/20 oz or less) but does good things. I also recommend fresh orange juice (Tropicana and Florida's Natural are two good
not-from-concentrate brands which don't cost a fortune) for the natural sugars and potassium. There's also a protein bar called "Real Protein" (I think) which is moderately tasty and has no gelatin. You'll need extra vitamins and stuff 'cause your body doesn't process food and nutrients the way it was originally designed.

Take it slow. Cut yourself some slack. Learn your limits, but don't be
stifled by them.

I can ride circles around some, but I'll never be as good as others.

In my prime, I can go 10 miles on rollerblades, do a 50-minute yoga routine, or go 9 miles on a bike without breaking a sweat. I'm not perfectly primed right now, but I'm planning to do a combo of yoga and recumbent training over the winter (with a little belly dancing thrown in) to get back up to my fitness goals and count the days until good weather.

BTW, I've had my ostomy since I was 12. I went through adolescence with it. I got married after having it (and my husband has no complaints). I teach a full load. I write novels. I dress in wild costumes. I work Renaissance
Festivals. I'm chasing every one of my dreams with reckless abandon.

And there's no handicapped sticker on my car. So there. Nyeah.

IN A NUTSHELL: Do as much or as little as you want. Wear what's comfortable. Remember that even the most well-intentioned bike shop is only there to sell you stuff you may or may not need. Keep your friends close --
you want their company and support.

So go ride. :)

Melinda
Minneapolis, MN